
Just two days ago I found out that my husband had signed me up to do a dessert. Thanks Alan. (To give him credit he did say it was okay not to do it.) Maybe it was a good thing because it got me out of a funk. Y'all know why I am stressed/worried/upset/nervous/sad. More on James in a moment. I really didn't know what to do. It's my husband's personal ritual to get the girls a little treat on his way home. Madeline LOVES....when I say LOVES I really mean LOVES Hostess SnoBall Cakes. Her sister Natalie is a Raspberry Zinger kind of girl lol. So while the crumbly mess went everywhere I decided to make my own version in cupcakes style....for Adult Taste Buds.
A dark chocolate cream cheese (mega whipped) frosting. A devils food cupcake with dark chocolate ganache center. Topped off with coconut and marzipan holly leaves with Sixlet holly berries. So far from what I hear they were a big hit! And you know what was funny? There were 5 other desserts there.
Things have been busy here. Snow. Ice. Rain. Sleet. More Snow. More Rain. More Sleet. Our dog Buster is having a ball in the snow. He loves being out in the country (he's a town raised dog) Finally got half of the Christmas lights up outside yesterday. Tonight we are going to finish. We went out and chopped down our Christmas tree. (Who am I kidding I stayed in the car...husband made me boo.) We decorated it and tinselized it. Wrapped the presents. Put them under the tree. Then my children proceeded to dismantle it :). This year I swore I was getting a smaller tree. When I picked it out from the car mind you it looked small... Yeah its 10 feet tall. The last two feet of it are devoid of decorations and tinsel thanks to Madeline and Natalie. But hey...its fun!
Now onto the crappy portion of the show. The day before James left for Cleveland (again), which was supposed to be the day he was leaving, he was urinating blood. So they had to get him tested. We don't know what the results are yet. As we speak he is now on his way home. My husband called
me 
to tell me that the company won't sell the sleeve to the U.S. and there is a pretty good chance that the FDA won't even approve it anyway. Right now his doctor is prepping for a heart and lung transplant (which mean they are seeing if it is even viable...there is a 90% chance that it isn't) and talking with 3 different hospitals. As you probably know his chance of survival is less
than 10% for that. Basically its either let him slowly die or he dies in surgery. My husband and I are frustrated
me 
to tell me that the company won't sell the sleeve to the U.S. and there is a pretty good chance that the FDA won't even approve it anyway. Right now his doctor is prepping for a heart and lung transplant (which mean they are seeing if it is even viable...there is a 90% chance that it isn't) and talking with 3 different hospitals. As you probably know his chance of survival is less
than 10% for that. Basically its either let him slowly die or he dies in surgery. My husband and I are frustrated as to why they are not looking to send him over to England to have this done if it can't be done in the U.S. It's almost like they are giving up. Alan will be talking with them tomorrow to nail done what gives. Next month is the meeting for out in Cleveland when a bunch of doctors, patient advocates and the family discuss the options or lack there of. Alan has already put the paperwork in for Federal Family Leave. They are saying even if they put the sleeve in the conduit there isn't anything after that. This whole thing is crazy because he doesn't have TIME. The conduit is leaking really bad. I can see the difference in him. His O stats are shit. Even though all the odds are stacked against him...I still believe that all things are possible with God. What better hands could he possibly be in but His? Please, please, please pray your hearts out for him.

























